July 10 - "Tuesday, Tuesday..."

Alright, it doesn't have the same ring as the Mamas and the Papas' "Monday, Monday" but WHO CARES? Dr. D. committed to sending Max home on Tuesday, July 15! His commitment came with his usual caveats of course, "barring any emergency or change in care" blah blah blah.

We should meet with Max' night nurse in the next couple of days. She'll be with us most definitely through August, at which time we'll evaluate whether he will need continuing care. Also coming (we hope before the weekend) is Max' equipment and peripherals -- oxygen tanks (both for home and portable), spO2 monitor, feeding pump, supplies for feeding tube, etc. I've got his room 80% set up and have gone through half of Meaghan's clothes looking for non-gender specific clothing (or is it gender non-specific? I hate English). I could have sworn we had more yellows and greens, but *sigh*, I'll have to do some more shopping. I know my dad is reading this thinking "that's all she needs, another excuse to spend more money." Save your breath daddy, I've already had the conversation with you in my head!

Back to Max: I set up his appointment with the audiologist today; it's really soon, just one week after he comes home. He also already has an appointment in August with his Developmental Pediatrician. His Regular Pediatrician originally said he wanted to see Max once a week after he comes home, but I think we've agreed on every other week.

So what's gonna happen with the blog after he comes home? I don't know, Phoo and I haven't talked about it. Max is far from a healthy baby, but stable enough to where the daily happenings will (we hope) lack the drama of the last 2.5 months. I know I've benefitted from writing, and I think Phoo has too. I'm not even ready to go back and read the earlier posts, and I've avoided doing it so far. I think maybe I'll keep writing as long as I know someone is reading it, admittedly and uncharacteristically extroverted of me I know, but just deal with it.