14:35 - If ever I suffered from the "I can do it all" complex, color me cured. I tried to spend the night in Max' new digs on Saturday night, I did. Oh my gawd I was not prepared for how thoroughly impossible it was to sleep for more than 10 minutes at a time. Between Max' gagging and spitting up, the nurses coming and going, the monitors beeping, the pumping, I hardly got any sleep. So we're just gonna go back to the split shifts to which Phoo and I have grown accustomed.
Max has his first round of physical therapy at 13:30 today. The OT timed it right before his feeding but what we didn't factor in was his staying awake between his 11:00 meal and the PT. So by the time he finished his exercises he was pooped. I made the call to forego the bottle. We'll need to do his PT twice a day for now, as his head control is very weak and his legs are floppy. He tried very hard though and I'm so proud of him. He let the OT know he was not happy with being challenged. In the next week she'll have a PT plan ready for us so we'll know exactly what to do when he comes home.
Either Phoo or I will post more later. I've composed this all on my iPhone and I'm tired of screen typing.
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