Sunday, July 27, 2008

July 27 - Revolving Door of Roommates

Since we've been in the garden room (which is divided into two "suites" that share a main entrance and a bathroom), there have been four other families that have come and gone. This morning brought family #4 at 07:00, who were moved out by 19:00 and replaced by family #5. Each time I hope for quiet neighbors. Family #1 was the loudest, with a very young father somewhere between 18-21 and a mom who neither Phoo nor I saw in the two weeks we shared space.

Max had a pretty good day. Dr. R2 got a little too aggressive with the compressed feedings. He tried 75 MLs over thirty minutes this morning and afternoon (big barfs), and scaled it back to 75 MLs over 45 minutes (another big barf). Ugh, the devil IS in the details. If we can just get his feedings straightened out and get him to consistently gain weight, he can come home. Well that's only partially true, because Dr. R2 wants reassurance that Max won't cause another breathing scare or bloody emesis scare. I sure am feeling like it's time to come home. The entire NICU was in contact isolation last week (for the staff only thank goodness) because of a water-borne bug I'd never heard of. On top of that, Family #4's daughter was recovering from a staph infection. I feel so paranoid walking around the NICU. I should invest in Purell as much as I go through in a day.

Tomorrow brings another round of blood counts, liver function tests, etc. Max has looked so good I can't help but think his numbers will reflect it.

Continuing the pictures trend, here he was today in Meaghan's old vibrating chair. He fell asleep in it. I think Max is an old soul. He just sat there in his chair, looking at the sunlight streaming in. No fussing, no crying. Just staring. After 15 minutes or so of contemplating the universe, he got fussy and wanted his pacifier. But hey, all old souls were young once, right?

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