Before the feeding, his diaper change revealed that he had blood in his stool again. However this time, some of it originated externally. He has a diaper rash right now that has escalated to bleeding. As I was wiping his little bottom, the wipe was coming back a little bloody. For this reason, the nurse had be use only water with a sterile wipe instead of the normal diaper wipes that have a more harsh solution.
The IV in his right foot had finally reached the end of its usage stability. It was starting to seep a little blood, so that was removed tonight also. Fortunately it didn't bleed much when it was pulled out. It didn't need to be replaced right away since won't need an IV again until the next time he needs any blood products (FFP, platelets, etc.). I'm glad that they didn't need to stick him again tonight after all the tests this morning.
His O2 supply on CPAP is 33% and his SPO2 (oxygen sat has been high so far tonight, so we're hopefully still on track to ditch the CPAP soon. I also noticed that his breathing rate is a little slower (60-70) than it's been the last few nights. It has been a little high (70-85) with occasional peaks up to 110. Sitting still and holding him directly in front of the display gave me a chance to monitor it for a while.
For those who are interested to get an idea of the dozens of papers we've been reading to make more informed decisions about Max' treatment, here's one of the medical conference papers on ganciclovir reasearch (click on title to access):
The Treatment of Cytomegalovirus Infection - Paul D. Griffiths, Department of Virology, Royal Free and University College Medical School, Royal Free Campus, Rowland Hill Street, London NW3 2PF, UK |
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